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  • FOOD INTAKE
    7/28/09
    8oz. can pediasure 3x/day

    9/28/09
    6oz pediasure at breakfast & lunch
    8oz pediasure at dinner

    10/7/09
    6oz. pediasure 3x/day

    11/22/09
    4oz pediasure at breakfast & lunch
    6oz pediasure at dinner

    12/6/09
    4oz pediasure 3x/day

    12/8/09
    4oz pediasure 2x/day

    12/13/09
    100cc pediasure 2x/day

    12/23/09
    60cc water during day

    12/27/09
    30cc water during day

    9/2/09
    2 oz prune juice @11:30am daily with 1/4 tsp senna bi-daily

    MEDICINES
    7/16/09
    4 dexamethasone tablets (100mg) @9am

    8/10/09
    2 dexamethasone tablets (100mg) @9am
    2 dexamethasone tablets (100mg) @9pm

    10/22/09
    1 tsp childrens motrin at night before bed

    12/8/09
    1 tsp childrens motrin as needed

    12/8/09
    1 mg. tablet Ativan as needed during day
    2 mg. tablets Ativan at night before bed

    12/21/09
    1-2 drops Atropine as needed (given between bottom lip & teeth)

    1/3/10
    4 drops (0.125mg) morphine as needed

  • Words of Wisdom

    I Can Only Imagine~Mercy Me

    "Then you will call upon Me and come and pray to Me, and I will listen to you." ~Jeremiah 29:12

    "For I know the plans I have for you," declares the LORD, "plans to prosper you and not to harm you, plans to give you hope and a future." ~Jeremiah 29:11

    None of us is wise enough to make it on our own. We need the help, the wisdom, the guidance of the Almighty... There is no substitute for prayer. There is no greater resource.
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April 27, 2007

Comments

Perry Hiltz

Hoping that all is going well for you. You are in our prayers.

Thanks.

Perry

Cheryl Whitesel

My many thoughts and prayers are with you and your family. ~Cheryl

stephanie costello

Hi Sonda,

just read your story, had no idea.. hope this little contribution can help in some way. My prayers are with you all the way. good luck. I know you will get there . Stephanie.x

Jamie

I hope only the best for oyu and your family. My daughter was born one day before Baylee (feb 13, 1996). I see this as a sign help where I can. It is not much but every little bit helps. You are in our prayers.
Jamie

Naya

its sad that you have to see your baby girl go
through such trials. nothing but the best i hope for you and your family . Stay strong Baylee .

-Sincerely , Naya Dorsey
(jan-3-1994)

naya

omg i ddnt know that she died im so sorry .
im doin a project on leigh's disease and im going to tell the story of baylee's life .


-Naya D;

Maria Torres

sorry about what has happen to your baby girl i am also going through the same thing with my little nephew he has the same thing. today he is 8 months old and we found you yesturday but i hope the best to you and your family God Bless

The comments to this entry are closed.